Autism Speaks is celebrating National Disability Employment Awareness Month through October, and has numerous resources and information available! Please click on this link to read more about re-thinking employment.
#autism #autismspeaks #nationaldisabilityemploymentawarenessmonth #NDEAM
By Samantha Kolkey, LCSW
Happy Friday y’all!
Options for College Success is proud to inform everyone that we are hosting a free event on planning for now and the future!
We are bringing together Andre Sam from The Special Needs Education and Advocacy Project and Kathryn Jackson from Autism Spectrum Therapies for an evening workshop discussing the logistical and emotional support needs in life transitions for individuals with disabilities. In addition, there will be a special segment presented by staff from Northwestern University’s Neurodevelopmental Disabilities Lab regarding their current research studies on autism and Fragile X.
This event is on Wednesday, February 28th 2018 from 6:00pm-8:00pm at the Segal Visitor’s Center at Northwestern University.
We will have refreshments!
Please let me know if you plan to attend. Email: email@example.com.
I hope to see you there!
By Samantha Kolkey
At Options for College Success, one of our goals is to raise awareness and advocate for the needs of the population we work with. Cancer can impact anyone, at anytime, anywhere. So, today we advocate for the population we work with (and the entire world population) by raising awareness about this lethal cancer. Our organization encourages you to represent this day and to spread the word by wearing purple, donating to cancer research funds or PanCan, educating yourself about pancreatic cancer, and/or doing what feels right to you to recognize @worldpancreaticcancerday.
#Demandbetter #Wagehope #WPCD
By Samantha Kolkey
Next week I will get the opportunity to visit the Neurodevelopmental Disabilities Lab at Northwestern University. Dr. Molly Losh, principal investigator of the Family-Genetic Study of Language in Autism, and her team are exploring how genes involved in autism may play a role in language and other skills to better inform the causes of autism. They continue to recruit participants for this study as their research continues. Please click on the link if you would like to find out more information about this study: http://ndl.northwestern.edu/autism/
In addition to autism research, the Neurodevelopmental Disabilities Lab is conducting research on Fragile X Symdrome. Fragile X is caused by a gene mutation and this single mutation is the “most common inherited cause of intellectual disability.” The study focuses on families and exploring language, early development, and other skills regarding the gene mutation. Please click on this link for more information about this study and becoming a participant: http://ndl.northwestern.edu/fragile-x/
I am greatly looking forward to this opportunity and learning more. If you have questions or comments you would like me to share with the researchers, please leave them in the comments section.
Have a great Thursday!
By Samantha Kolkey
Today I was shown an opinion piece published in Friday’s Wall Street Journal titled “Autism Research Should Be Financed Like Venture Capital.” I was so intrigued. The author of the piece, John Rodakis, is the founder and president of the non-profit N of One: Autism Research Foundation. This non-profit uses the funds they have available to fund autism research.
Mr. Rodakis’ piece focuses on the issue of how three organizations make up 99% of autism research funding, and these organizations provide funding to autism research that fits into what he calls the “genetics-first paradigm,” limiting the scientists who need funds to conduct their research based on more “radical ideas.” He cites two studies, one of recent note and the other from 15 years ago, which both lend evidence to theories that are not within the genetic paradigm. The more recent conducted by Dr. Robert Naviaux, professor at the University of California, San Diego who theorizes that a treatable metabolic condition may underlie autism. In a small clinical trial involving 10 boys with autism, he found a significant improvement in language and social behavior when given the drug suramin. The other was a clinical trial with 8 to 10 boys with severe autism who were taking the antibiotic vancomycin and were seen to have a significant improvement.
He proposes ideas on how the organizations providing funding to autism research can utilize a venture-capital model to diversify the types of research studies being funded. The greater the risk, the greater the reward, right? He proposes placing a hard cap on the number of grants awarded to studies that are genetics related to open up more grants to studies that move away from a genetic focus. Another proposal Mr. Rodakis made was for the National Institute of Health to create an office made up of analysts whose job is to “identify and challenge conventional points of view.” This group of analysts could then fund studies that counter the dominant model.
Since there are still so many questions surrounding autism, why not look to other theories? Why focus on one model, when there are many researchers out there looking to test out their potentially groundbreaking theory?